Carer submission by Evelyn Scott OAM, Kylie’s mother and carer.
Submission no. 94
‘France: Take Me to the River – Cruising along the Seine from Paris to Normandy is the perfect way to travel’ article.
Kylie with her mother Evelyn enjoyed this wonderful cruise following Kylie’s Art Retreat in France.
In the final paragraph the journalist noted ‘It’s time to be sad as I have to say goodbye to the ship and my lovely fellow passengers. There are the Terrells, the gorgeous Kylie Scott and her mother Evelyn from Sydney.
Kylie’s Sunflowers art work
Research led by Dr Samuel Arnold, Lecturer, Western Sydney University, and Visiting Research Fellow, UNSW Department of Developmental Disability Neuropsychiatry.
Kylie was fortunate to be part of The Valued Contributions Project as one of 11 people with intellectual disability who met to ‘contribute’, finishing with an evening at UNSW to speak to their ‘Contributions’.
* The conceptualising of ‘contribution’.
Often the many contributions that people with disability make are overlooked or undervalued, by themselves and by others. We believe that if these contributions can be identified and measured, that their significance will become more apparent, elevated, and valued in society. Also that people will be better supported by their networks and the NDIS in their aspirations and efforts to make and sustain such contributions.
*Kylie speaks at 21.40 and 32.00
Presentation (on Zoom) for the CESPHN (Central and Eastern Sydney Primary Health Network) GROW program delivered nationally to GPs from My Health.
Kylie spoke at The South West Sydney Disability Expo
Kylie spoke at the Sydney Disability Expo
Sydney Local Health District (SLHD) - Innovation and Research Symposium, 20 July 2023
Keynote Speaker: Kylie presented the talk she gave at the UN, NY.
The aim of the Having a Say Conference is to empower people with disability to:
Have a say about issues that affect their lives
Celebrate ability and achievement
Help plan and run a national conference
Be heard by politicians, government and service providers
Meet people from around Australia and the rest of the world
Be supported to share ideas and talk about issues and recommendations made at the conference
‘Valued Contributions’ presentation to PANDDA conference, Parramatta, NSW
Contributions Project 2022 (with Mum and nephews) - 16 June 2022
Homework
In June 2021, Kylie and other self-advocates met from around the world, organised by Inclusion International over Zoom to discuss deinstitutionalisation. You can read Inclusion International’s Global Self-Advocate Report 2021, ‘Closing Institutions and Living in the Community’.
NB: Kylie has attended, and spoken at, World Down Syndrome Congresses in Sydney (2000), Singapore (2004), Glasgow (2018), Dubai (online 2021), and will speak at the Brisbane Congress (July 2024)
In 2003 (Dublin) and 2007 (Shanghai) Kylie played tennis with Special Olympics Australia, and spoke to service organisations (ie. Rotary) to raise funds for the ACT team to participate.
Presenting at the South West Sydney Disability Expo at Liverpool
‘My Amazing Life’
The Minister for Families and Communities, and Minister for Disability Inclusion the Hon Kate Washington hosted an afternoon tea in the Jubilee Room of NSW Parliament House exclusively for Down Syndrome NSW members and their families.
This was a significant opportunity for members to be included and to celebrate World Down Syndrome Day.
At the Guardianship Division, NCAT, staff presentation celebrating the International Day for Women and World Down Syndrome Day.
A delightful and truly special evening at NSW Government House, hosted by DS NSW Patron, NSW Governor, Her Excellency the Honourable Margaret Beazley AC KC and Mr Denis Wilson to celebrate World Down Syndrome Day.
Kylie talked about the UN Convention on the Rights of Persons with Disability (the CRPD), legal rights, decision making and easy to understand communication.
Tuesday 21 March 2023 was World Down Syndrome Day, which is a day to celebrate people in our communities who have Down Syndrome.
The Rotary Club of Concord, Wentworth Point Probus, SLHD, Hireup and crowd funding generously supported Kylie so she could join other self-advocates from around the world to celebrate World Down Syndrome Day at the United Nations in New York.
For World Down Syndrome Day (21 March 2022), Kylie was flown to Melbourne to be on a panel at Inclusion Foundation’s Chairman’s Lunch, at the MCG with Dylan Alcott AM (2022 Australian of the Year); Cate Sayers (Founder and Director of Inclusion Foundation), and Brian Cook (CEO, Carlton Football Club). The panel discussion addressed ‘How do leaders champion inclusion?’
Kylie attended a World Down Syndrome Day afternoon tea at Parliament House NSW. The tea was hosted by the NSW Minister for Families and Communities and Minister for Disability Services, the Hon. Natasha Mclaren-Jones.
Following other speakers, the Sydney Swans AFL CEO Tom Harley confirmed the new 3-year partnership with the Down Syndrome Association of NSW. Kylie is pictured with Tom here.
In December 2021, Kylie was a guest speaker on The Drum. This came after her involvement in the Limb Family Foundation’s report, ‘Reaching Potential – Experiences of Young People with Significant Intellectual Disability.’ Statistics from this report were quoted on The Drum. Kylie spoke with host Ellen Fanning about her experiences, and her passion to speak up for others living with intellectual disability. The report can be read here.
In January 2021, Kylie was featured in the Concord Rotary Channel editorial.
(Tap on the link below to read about Kylie on pages 5-6.)
Read here -> Concord-Channel
See Kylie’s presentation, ‘Improving Engagement with People with Intellectual Disability.’ This speech was screened and made an exhibit of the Royal Commission into into Violence, Abuse, Neglect and Exploitation of People with Disability (EXHIBIT 4-1.01 – NSW.9999.0002.0001)
- See my full video here
